“Rosaline, they’re saying it’s hereditary,” said her father.
“I think this is going to have implications for us.
As it turns out, never a truer word was spoken.
Rosaline Callaghan tells her story of Hereditary Amyloidosis Thr60Ala, a rare, progressive and ultimately fatal disease, for which, until a few years ago, there was no treatment.
Known throughout the world, where it travelled with the Irish Diaspora, as Donegal Amy, it originates in a fifteen mile ribbon of coastline in North-West Donegal.
A mix of memoir, geography, history, science and practical tips on living with the condition, this book details Rosaline’s forty years of living in the shadows of Donegal Amy.
Donegal Amy: A Rare Inherited Disease from Ireland (Paperback)
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